Our giving: Organizations

Janssen is fully committed to providing high quality products and services to healthcare professionals, patients and their families. Simply put, we always place the needs and well-being of the people we serve first. It is important for us to understand all aspects of patients’ needs. That’s why we engage and collaborate with patient organisations, who play an important role in informing, supporting, and assisting patients. As a company, we learn from this interaction, and that helps us in the development of new treatments and in providing useful information.

It is our goal to ensure that these relationships and partnerships proceed within a principled framework of mutual respect and learning, integrity, independence, and transparency.

This framework has been described in the “Code Of Practice On Relationships Between The Pharmaceutical Industry And Patient Organisations", as developed by the European Federation Of Pharmaceutical Industry Associations (EFPIA) in collaboration with pan-European patient organisations.

• The independence of patient organizations, in terms of their political judgment, policies and activities, will be assured.
• All partnerships between patient organisations and the pharmaceutical industry will be based on mutual respect, with the views and decisions of each partner having equal value.
• The pharmaceutical industry will not request, nor will patient organisations undertake, the promotion of a particular medicine.
• The objectives and scope of any partnership will be transparent. Financial and non- financial support provided by the pharmaceutical industry will always be clearly acknowledged.
• The pharmaceutical industry welcomes broad funding of patient organizations from multiple sources.

In order to facilitate collaboration, Janssen has developed the following:

• A review process by a multi-disciplinary committee to evaluate requests for funding or collaboration.
• Disclosure of the funding provided to patient organisations. The purpose of our disclosure of contributions is to demonstrate our ongoing commitment to transparency.

What is the nature of our collaboration with patient organisations?

Janssen may interact with patient groups in the following ways:

• Support of educational programmes and conferences;
• Sponsorship of fund-raising events;
• Contributions to support programmes and services for the patient community and their care-givers;
• Contributions to support activities to help patients and care-givers advocate better treatment, services and support; and also collaborations to raise awareness about the diseases.

The following types of requests are generally not eligible for contributions:

• Scholarships to individuals;
• Direct contributions to individuals;
• Loans.

Contributions Process Statement

A multi-disciplinary committee reviews all requests. Requests should include the organization's mission statement, tax status, project/event description, description of how the funds will be used, project budget (if applicable) and annual operating budget.

Description: Purpose of the support is to develop educational tools to HIV positive women in Latvia: booklet and update of web page.

Description: The purpose is to support patient organization to start an HIV advertising campaign a month before World AIDS Day on 1st of December 2016 entitled "I know! Do you?" , which would be conducted on electronic media via three different video clips featuring popular celebrities. These celebrities would invite people to be responsible for their own, and their partners health, by finding out what their actual HIV status is. The decision to take this path is based on many other country's experience, that it is precisely popular celebrities and artists who are best able to reach people and reduce their ideas about stereotypes, denials and prejudice, as well as being better heard in situations where such "difficult themes/concepts/ideas" are concerned.

Description: The purpose is to support patient organization to organize full day conference at World AIDS day to discuss on compliance in Latvia, which is a problem. The focus will be to provide treatment for all who need it, and make it as efficient as possible in order to reduce the proportion of resistant patients. Therefore, professionals who have daily contact with groups of people with a high risk of infection, with HIV-infected ones, need to share and seek common solutions for anyone in need to receive information, support, and improve compliance. Number of participants 40-50.

Description: Supporting the development and maintenance of the Latvian HIV patient organization website.

Description: Supporting MS disease awareness campain in society through publication in magazines "Tautas veselība" and "Sievietes veseliba"

Description: Supporting organization of the Annual 20th anniversary meeting of Latvijas Multiplās sklerozes asociācija.

Description: Supporting edition of the book on Multiple Sclerosis disease awareness.

Description: Supporting organization of the disease awareness program of schizophrenia, it's treatment and related issues in Latvia.

Description: Supporting organization of the practice sharing visits to non-govermental organisations in Lithuania.